Posted by FRANK W. WOELKERS on October 14, 2001 at 21:05:44:
I AM A 51 YEAR OLD MAN THAT UP UNTIL 3 YEARS AGO WAS DIAGNOSED WITH LYMPHADEMA IN MY LEGS. I HAVE HAD PROBLEMS WITH MY LEGS SINCE THE EARLY 1980'S AND SOUGHT NUMEROUS PHYSICIANS FROM THE EARLY 80'S TIL 1998 WHEN FINALLY A SURGEON AND MY PRIMARY CARE PHYSICIAN THAT I PRESENTLY HAVE CAME UP THE RESULTING DIAGNOSES OF LYMPHADEMA. THE BOTTOM LINE IS THAT MY LYMPHADEMA HAS GOTTEN SO PROFOUNDLY WORSE SINCE THE 80'S THAT I HAVE GREAT DIFFICULTY WALKING, CAN'T WEAR FOOTWEAR, PAINFUL AT TIMES, LEGS ARE HUGE, SORES LEAK FLUID AND DURETICS CONFINE ME HOME AND MAKE ME EXTREMELY WEAK. I AM SEEKING HELP FROM ANYONE WHO LIVES WITH THIS DISEASE, KNOWLEDGE, BETTER CARE/MAINTENANCE ADVICE, GROUP HELP FORUMS, WHATEVER. PLEASE CONTACT ME.