Posted by loell pokorny (198.81.26.49) on January 23, 2004 at 18:16:34:
In Reply to: Re: Lymphadema posted by marlies perez on January 26, 2002 at 08:15:14:
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: : : : Has anyone heard of lymphadema? A friend of mine has this and is having trouble finding treatment because it's so rare. Any suggestions??
: : : I have had lyphadema for 32 years. If theres any one that wants to talk. Please contact me. I know quite a bit.
: : i have lyphadema it has been passed down from the women in are family we all seem to have it my mum being the worst she can hardly walk now her anckle hangs over her foot making life very difficult i have the same & now my sister seems to be getting it as well ,here in england the doctorsno nothingwe are in great pain & would like to no if there is any thing we can do to stop it getting worce or some help for this desease that seem to effect all the women in the family please help thankyou
: yes, unfortunately lymphadema is a horrible condition people do suffer from, I also suffer from lymphadema, i am 21 years old and i got it when I was 17 years old. My mother also has it in one of her legs. There just isn't enough information out there unfortunately, however for severe cases of lymphadema as with extreme swollense called elephantigitis, the one thing that helps big time is the weather. Here in Florida in the summer I suffer alot, but in the winter it seems to almost disappear. when i lived in Spain under extreme cold weather my lymphadema became nearly extinct.Please Email me so we can talk .....